Pages

Showing posts with label bar infection. Show all posts
Showing posts with label bar infection. Show all posts

Tuesday, October 7, 2014

Oh Happy Day!

CJ had appointments this morning with the Infectious Diseases doctor and the surgeon.  For the last 6 weeks, we've been taking CJ to the hospital to have blood drawn.  He continued his oral antibiotics.  Our hope was that since his blood work has been within normal levels the last several times, CJ would be released from the ID doctor's care.  We were ALL tired of antibiotics!

Happily, Dr. Han agreed to let CJ discontinue his antibiotics.  He wants CJ to have some blood drawn in a month to make sure the levels are staying within normal range and the infection isn't coming back.  Yay!

When we checked in to the surgeon's office, they sent us for an X-ray.  After looking at it, Dr. Dassinger said every thing looked great, and he was pleased with CJ's progress.  Of course, he hates that we were the 1% that has to deal with an infection, but he was glad to hear CJ had been able to discontinue antibiotics.

So, we go back for blood work the first week of November, and hopefully, the results will show that we truly are finished with the staph infection.  We love Dr. Han, but we really don't want to see him again!  LOL!

Unless problems arise, we are on a normal post-op schedule with the surgeon.  We'll see him in May 2015 at the year mark of the bar insertion.  Assuming all is well, we won't see him again until May 2016.

I'll post again when we hear about the blood work next month.

Wednesday, July 23, 2014

Freedom! And summer finally begins!

CJ had an appointment with his ID doctor today, and we were VERY hopeful that the PICC line would be removed.  The lab work showed everything within normal ranges!  And since the incisions were closed and not draining, we had every reason to have that hope.  CJ was so confident, he actually wore his swim suit to the doctor's office, so I could drop him off at the pool on the way home!  Remember, he hasn't been able to swim yet this summer.  And he usually practically lives at the pool during the summer.

The doctor came in and talked to us.  He asked if there had been any fever or pain.  We were pleased to be able to answer no.  He then asked both of us if we were comfortable with removing the PICC.  We both said yes.  Then the doctor said those words we were longing to hear:  he was going to pull the PICC!

CJ had been really nervous that the process of pulling the PICC.  He was worried it would hurt.  That was the only apprehension he was feeling when the nurse came in to pull the line. 

When the nurse came in, it took a few minutes for her to get set up and remove the tape & stuff securing the line into the arm.  When that was done, she told CJ to take a deep breath.  He looked away and took the breath.  What he didn't know, was that while he was breathing in, the nurse was pulling the line, wrapping it around her hand like yarn.  As CJ let out his breath, the nurse said, "OK.  That's it."  CJ's eyes got wide, and he was completely surprised that it was already done!  I really wish I had a picture of his face; it was priceless.  Obviously, it didn't hurt; it was a quick and painless procedure. 

Here's a picture of the PICC line:

While CJ held a cotton ball on the hole where the line was, the nurse measured the length of the PICC line.  It's important that the length of the line that was pulled out equals the length of the line that was inserted; obviously, no one wants any pieces of the line left in the body.  I'm not sure what would happen if the measurement didn't match; thankfully, ours was spot-on.

The doctor prescribed CJ an oral antibiotic that he'll take for another 2 months.  It's a hefty dose:  1000mg cephalexin 3 times a day.  Unfortunately, we are still on a 6:00AM, 2:00PM, 10:00PM medication schedule, but at least it's just quickly swallowing a couple of pills instead of a 30-minute hook-up.

CJ was so excited about the PICC line being out!  Then came the words that completely deflated him.  The doctor said he didn't want CJ swimming for another couple of days while to make sure the site for the line was healed.

As we left the doctor's office, CJ's attitude was on a downhill slide.  He wanted me to just drop him off at the pool anyway; he'd waited to swim long enough.  I was afraid we were about to have a long argument, when a thunderstorm rolled in to the area.  Thankfully, this took care of the problem; the storm closed the pool for the rest of the day. 

Wednesday, July 16, 2014

Recovery Continues

Got a couple of great reports today!

First, we got a call from Dr. Han with the results of this week's blood work.  Everything looks really good!  All the inflammatory markers are back within normal range!  We're hoping that since his incision finally closed up, the doctor will pull the PICC line next week when we see him.

Secondly, we went for a follow-up visit with our surgeon today.  CJ had a couple of x-rays taken, then we saw the doctor.  Dr. Dassinger was happy with where CJ is in his recovery, and he was glad to see both incisions had finally closed.  The x-rays looked good.

The doctor said that CJ was free to do whatever activities he felt comfortable with, except things like organized football and, of course, no swimming with the PICC line.  Normally, he would have us come back in 6 months, but since CJ had the bar infection, he wants us to come back in 3 months.

That's about all for now.  Hopefully, next week, I'll be able to report that the PICC line is out, and CJ is able to enjoy the rest of his summer without any limitations!

Friday, June 27, 2014

Friday Report

We went to see the Infectious Diseases doctor today for a check-up.  He says CJ is doing well, although he's not healing as fast as he'd like.

They did lab work first, so that they would have the results before we left.  Dr. Han, the ID doctor, thinks CJ may end up on antibiotics longer than initially expected: 3 months or more.  However, after 6 weeks, he may be able to switch to oral antibiotics if the infection in responding well.

The labs came back, and & overall, Dr. Han was pleased.  The white blood count, liver & kidney functions were all normal.  His sed rate was elevated, as expected, but it was still 10 points lower than when he was in the hospital, so that's good.  Another marker that Dr. Han follows is the C-Reactive Protein (CRP).  A normal rate for this inflammatory marker is below 10.0.  CJ's CRP was 12.1.  Unfortunately, we didn't have a previous test to compare this to, but Dr. Han said that most of the time when people have bad infections like CJ's, the CRP is in the 100s.  So, he's very pleased with that.

We also talked to Dr. Han about CJ going to camp next week.  Since we knew he would be post-op, he isn't signed up for any strenuous activities.  CJ's dad will also be there all week, and there is a medical facility where CJ can get his infusions and go inside if he gets overheated.  Dr. Han wasn't thrilled about the idea, but since we'd thought things out and had things arranged, he was ok with it.  He gave us a permission slip stating that CJ could be there but that he could not participate in strenuous activities or swimming.  He also told us to make sure the incision sites were well covered and cleaned daily.

We asked him about the pain that CJ still feels in the lower left side of his chest.  The right incision is still draining a lot, but the left incision doesn't drain as much.  He said that it's possible the left side is hurting more because there is still more infection on that side due to the lack of drainage.  He didn't seem too concerned about it; we'll revisit the subject at our next appointment, and of course, if it gets worse, we will call.

After our meeting with Dr. Han, the nurse came in and changed out CJ's dressings.  She sent us home with some extra supplies in case he needs them at camp.

We have a follow-up appointment for the Tuesday after CJ gets back from camp.  The home health nurse will come that Monday to draw labs & change his dressings.

The IV supply company came by and dropped off another week's worth of CJ's Ancef AccuFlo balls.  We had requested extra, since he will be at camp next week, but apparently the shelf-life of the medicine is only 7 days.  Because of this, they couldn't bring us extra.  They said they could deliver to the camp, but we know some people going up toward the end of the week and could just take the few he'll need to finish out the week.

CJ is continuing to do really well.  He's active and still not having to take a lot of pain medication.  Generally, he can go all day but then starts feeling sore towards the end. 

Thanks again for the continued prayers!

Thursday, June 26, 2014

On the Mend!

CJ has had a couple of really good days!  He's been mostly pain-free & almost back to normal!

Tuesday had a slow start, but CJ ended up spending most of the afternoon at the neighborhood pool hanging out with his friends.  Obviously, he couldn't swim; his two incision sites are still open and draining, plus the PICC line prevents it.  But he was able to have fun being social.

Later, he went to his Taekwondo class.  Again, he didn't actually get to participate, but he was able to reconnect with his classmates & instructors and see what pattern they are currently learning.

We ended the day taking in a family movie.  He was starting to wear out by then, but we all figured he'd just be sitting at home, so why not enjoy a movie!  We had pain medication with us, but he never needed it.

(On a side note, we had the privilege of seeing an advanced screening of the movie "When the Game Stands Tall," a movie based on the true story of the longest winning streak in sports history...The De La Salle High School football team.  It was an AMAZING movie!  It's all about perseverance, teamwork, and overcoming adversity...and what's really important.  I think of it as "Rudy" meets "Remember the Titans."  Anyway, it comes out August 22, 2014...Go see it!)

CJ woke up once during the night needing some pain medication, but other than that, he slept through the night!

Yesterday, he again spent a lot of time hanging out with friends at the pool.  He only had some ibuprofen once!

Last night, he slept in his own bed for the first time in almost 2 weeks.  All of us were happy to have this small element of "normal" back.  He called for some pain medicine around 2:30AM, but other than that, he sleep well...and late!  He slept until almost 10:00AM!  Yes, things are getting back to normal!  LOL!

CJ's antibiotic infusions are going well.  Because he's been on so many antibiotics, we've added probiotics to his daily regiment.  We are giving him Life 5 probiotics by Young Living.  We are big believers in Young Living Essential Oils and the quality of their products.  We are also encouraging him to eat yogurt.

We have an appointment with the ID doctor on Friday.  CJ is feeling well enough that he's decided to go ahead and go to camp next week.  Since we knew he was going to be post-op, he signed up for fairly easy classes, so we don't have to worry about that.  My husband will be at camp, too, and he'll be able to monitor CJ and administer the IV antibiotics.  Of course, we've cleared this with his doctors!

Thanks for the continued prayers...they're working!

Tuesday, June 24, 2014

A Crazy Couple of Days

Friday night, CJ woke up once during the night, but was able to sleep through the rest of the night.  Shortly before 8:00AM, our surgeon's Fellow came by and looked at CJ's incisions.  He thought they looked good; he was happy with the draining and said there was no problem with going home.

A little later, Dr. Dassinger, our surgeon came by to check on us.  He reassured us that we had done everything right; there just isn't a way to know how or why we fell into the "lucky" 1% of Nuss Procedures that gets an infection.  He commented on how well CJ look.  We will keep our previously scheduled post-operative appointment next month.  Then, assuming everything is going well, we will see him at regular intervals that most pectus bar recipients do:  in 6 months, then in a year, then another...until the bar comes out. 

Our ID doctor will oversee the continued staph treatments.  We should see him later this week.

As is usually the case with hospital discharges, it was a matter of "hurry up and wait."  We finally got home around 11:00AM.  After getting CJ settled with some pain medication, I had to focus on a very busy day...my brother was getting married at 5:00PM!  (Yikes!)  And with the last 5 days spent in the hospital, nothing on my to do list got checked off!

At 12:30PM, the nurse for home health care came to go over all the paperwork and to show us how the IV medication will work.  It's actually a really neat set-up.  The PICC uses what's called an "elastomeric pump."  All I have to do is hook up the antibiotic, and it does the rest.  It pumps itself using positive pressure, so there's no equipment, electricity or batteries needed to work it, and it's really small and ambulatory.  Each pump, or AccuFlo Ball, is a single-use pre-measured dose of the medication.  It uses a one-way injection valve that just screws on, so there are no needles, and I don't have to worry about back-flow.  The injection rate is pre-determined, so I also don't have to deal with that.  It takes about 30 minutes for CJ's dose to infuse. 

It's a simple 5-step process:
1)  Sanitize the PICC injection valve with alcohol pad
2)  Push 5CCs of saline solution
3)  Attach AccuFlo Ball & start infusion
4)  Push 5CCs of saline solution
5)  Push 3CCs of heparin (a blood-thinner)
To make sure the correct order is remembered, the nurse told us to think of the acronym SASH:  Saline, AccuFlo, Saline, Heparin.  I forgot to mention the saline & heparin were in premeasured syringes that just connect to the injection valve, continuing to make this a very easy procedure.

About 1:30PM, CJ threw up.  At that point, he decided that he wouldn't be going to the wedding.  We were all sad about it, but we certainly understood.  The nurse helped us through CJ's first at-home dose of Ancef (the antibiotic).  Her visit was about two hours, which I didn't count on, so I was even more frantic when she left.

A dear friend came and stayed with CJ while the rest of us went to my brother's wedding.  I FaceTimed him when the ceremony started, so he was able to attend electronically...I love technology!

While I was at the reception, CJ called and asked that I come home.  He was hurting and just needing me.  When I got home, I gave CJ some pain medication. 

Around midnight, CJ let the pent-up frustrations of the last week out to me.  He was hurting and agitated.  "Why is this happening to me?"  The emotional release & agitation lasted an hour, until he fell asleep.  I assured him that while we don't know why it happened, we can trust that everything happens for a reason.  I reminded him of my favorite passage in the Bible, my life verse:  "All praise to God, the Father of our Lord Jesus Christ.  God is our merciful Father and the source of all comfort.  He comforts us in all our troubles so that we can comfort others.  When they are troubled, we will be able to give them the same comfort God has given us."  (2 Corinthians 1:3-4, New Living Translation)  I told him that sometimes the only person that can truly connect with, reach, and comfort someone who's going through a bad situation is someone who's actually gone through it themselves.  Their experience lends credibility to what they're saying.  Instead of someone who just sympathizes, his experience will allow him to empathize with others.
 

After his emotional release, CJ had a great night's sleep.  Sunday was up and down with pain and nausea, but there were no major issues.  He didn't throw up again, so that's good.  By mid-afternoon, the past week caught up with me, and I had to lay down for a nap.  My nap lasted two-and-a-half hours!

Our first full day of IV antibiotics at home went well.  The process is so easy that CJ was able to do the infusion himself!  The IV antibiotic is given 3 times a day.  He's also taking an oral antibiotic for at least a couple of weeks that he takes twice a day.  He'll be on the IV for 4-6 weeks.

Monday, CJ was feeling really well.  He had a great attitude, he was joking around, and he was begging to get out of the house.  A nurse came by to draw blood for lab work and to change the dressings & injection valve.  This will be done each week.

He felt well enough to go to a going away party in the evening and then later to the grocery store.  Personally, I think he just wanted to ride one of those scooters at the store!  LOL

The night started well, but at midnight, he needed some pain medication.  At 2:00, he needed more.  I had been sleeping in my bed, but at that point, he asked me to stay with him.  He was really hurting in the lower rib area on his left side; the same pain he had complained about in the hospital.  He was agitated about the pain and lack of sleep.  He moaned a lot during the night, but never really woke up again. 

Overall, it appears we're on the mend and that things are looking up.