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Tuesday, July 8, 2014

Post-Camp Report

CJ spent last week at camp and did great!  He enjoyed himself, rode his bike, and even went a couple of days without pain medication at all.  By the end of the week, he was starting to feel it, though, and decided to come home Friday night instead of Saturday morning.  Sleeping on the cot, and more specifically, getting up from it was his chief complaint.  He continued his IV infusions all week, never missing a dose.

It only took a couple of good nights' sleep at home to recover, and CJ was regaining his activity level.  He's continuing to ride his bike and feel better overall.

On Monday, the home health nurse came by to change out CJ's PICC wrappings & valve and to draw blood for labwork.  During the week at camp, CJ's left incision closed up.  The nurse took a look at the incisions, and changed out the bandage on the right side.

Today, we went to see the infectious diseases doctor for a check-up & got the results of the labs.  CJ's labwork looked good.  His inflammatory markers were all normal.  Dr. Han said that he probably would've discontinued the IVs and gone to oral antibiotics, but since one of the incisions is still open and draining, he feels we need to continue the IV.  We'll see him again in 2 weeks & reevaluate.  He was going to email Dr. Dassinger & update him, just in case he wanted to see us before our scheduled appointment next week.

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